Sorry for the lack of updates. We have had our hands full with the girls for the last few days.
Sydney ended up spiking a fever at 1am in the morning a few days ago. At that time, we started her on Tamiflu and Tylenol. Her temp of 101 broke within an hour. She was very tired and did not eat well the next day. Steve took Sydney to the ped office, and they believed it to be the flu (H1N1) also. We spoke to the cardiologist (Dr Falterman), and she gave us a few guidelines for Syd. 1)Syd drink 40 ounces a day,2) watch her sats,3) use anti-inflammatories, 4)and continue her aspirin. Syd has done well. The strange thing is, she has not had a fever since. Her O2 sats have been poor. Yesterday, Sydney looked good, ate good, and drank 50 ounces of fluid. I could not understand why her sats were still poor. I changed her finger prob and as of yesterday evening her sats were 84 and heart rate 100---and while sleeping really deep---her sats were 77 and heart rate low 70's. (great!) I am beginning to wonder with the increase in her heart rate, that maybe, Sydney is trying to jump back into normal sinus rhythm. Wouldn't this be great! Sydney continues to be very pale though, but her labs (electrolytes) were off according to Dr Z (ped)and the most likely reason for the paleness.
Aubrey has had a little more trouble with the flu, but she is 2 days ahead of Sydney. Aubrey's asthma has been the the main issue(along with some stomach upset do to drainage). Last night, Aubrey's asthma began to quickly go down hill. I was watching her peak flows decrease. I called the on-call doc, which happened to be Dr Z---Thank goodness! He called in oral steriods, and had her change from inhalers to nebs treatments. She looks so much better today. I think we caught it in time.
All in all, the girls are looking better. If there is no fever tonight, we may no longer be contagious. Steve has bronchitis, and I have been having on and off headaches, stomachs issues and general fatigue. Steve is on antibiotics, and I seem to be recovering also. If I had this, I hope it is done. This virus has been really strange. A fever does not seem to be the biggest part of this flu virus we had. Crazy. Some people have a week of fevers and some barely have one at all.
I really want to thank so many of you for helping out. I don't think we could have made it through this without you all. Thanks for bringing Aubrey's home work home, dinners, coffee, trips to the stores, supplies, constant checking in, and many other things. You all are the BEST!!I hope we are on the other side of this. I will pray Aubrey is done, and this is all Syd will get.
Lastly, I would like to ask for some extra prayers for a little girl named "Til". "Til" is the granddaughter to a very close family friend. She is the same age as Syd ,with the same heart defect, that just had the same surgery (the fontan) yesterday. Please, if you would, keep her in your thoughts and prayers. She is going through the roller coaster ride of recovery, and my heart goes out to her and her family.
As always, thanks for checking in. Heart hugs,
Christy
Saturday, October 31, 2009
Tuesday, October 27, 2009
So, I am not crazy after all....
Today has been a busy day, like most days lately. Our plan this morning was to drop Aubrey off at a friend's house, so she could ride on bus, and then off to the pediatrician's office for Syd's lab work. That plan quickly changed this morning. Aubrey came to me after getting dressed, and said, "Mommy, I feel really weird. My stomach has been hurting all night long." Oh poor baby, I thought. She also said her throat hurt, and yes...she had a fever. So no school for her, and off to the doctor's office---this time with both girls needing to be seen.
Aubrey:
To make a long story short. She has the swine flu. She tested positive for Type A and Type B flu---swine and seasonal combined. Thank goodness, she has been immunized for both of them, so hopefully her case will not be as bad. She had a fever of 101 this afternoon, but broke with Tylenol and a nap. She has been instructed (poor thing), to stay in her room and play. Thanks to so many of my friends, she has had a good time eating Rita's slushies, watched movies on a borrowed DVD player, new and different movies to watch, homework delivered, dinner provided, and for Mommy--Clorox wipes, rubbing alcohol, dinner and lots of moral support. I love you guys!!
Sydney
Sydney was given a script for Tamiflu, but we were instructed not to use it until we see signs of the flu---the slightest of signs. Also, we need to keep Sydney and Aubrey apart until Aubrey has been on Tamiflu for 48 hours. We would like to hope Sydney (and the rest of us) will not get this. Sydney is the only one that has not been able to have either flu vaccinations, because of surgery. She is fragile right now, and has enough things going on with her. Sydney has gained her pound back (now 28 pounds), and her liver continues to be down (not holding fluid). She is pale--a sickly pale. Dr Falterman (cardio) and Dr Zachary(peds) talked over Sydney's lab work. Her potassium is up, she is hypovalemic (still to dry), iron levels ok, sats still down (at 77%). Dr F is cutting her spirolactin in half--this should help with the dryness, and help the rise in Potassium. Dr F asked me to give these change a few days, and watch for the O2 sats to trends up. Dr F wants Syd's sats to be 80 or higher. When she is sleeping -- it can be a little lower. The doc plans to put a halter monitor on Syd at the next appointment in 9 days. Dr F asked me to talk to Sydney about "wearing a backpack" . She thinks Syd's heart rate should not be in the low 60's while sleeping, so the halter monitor will see what Syd's rhythms are doing over 24 hours.
So, my gut was right.We still have things to work on, but we have clear plan now. Thanks for all of the prayers, please keep them coming. Also, thanks for checking in. Good night.
Love,
Christy
Aubrey:
To make a long story short. She has the swine flu. She tested positive for Type A and Type B flu---swine and seasonal combined. Thank goodness, she has been immunized for both of them, so hopefully her case will not be as bad. She had a fever of 101 this afternoon, but broke with Tylenol and a nap. She has been instructed (poor thing), to stay in her room and play. Thanks to so many of my friends, she has had a good time eating Rita's slushies, watched movies on a borrowed DVD player, new and different movies to watch, homework delivered, dinner provided, and for Mommy--Clorox wipes, rubbing alcohol, dinner and lots of moral support. I love you guys!!
Sydney
Sydney was given a script for Tamiflu, but we were instructed not to use it until we see signs of the flu---the slightest of signs. Also, we need to keep Sydney and Aubrey apart until Aubrey has been on Tamiflu for 48 hours. We would like to hope Sydney (and the rest of us) will not get this. Sydney is the only one that has not been able to have either flu vaccinations, because of surgery. She is fragile right now, and has enough things going on with her. Sydney has gained her pound back (now 28 pounds), and her liver continues to be down (not holding fluid). She is pale--a sickly pale. Dr Falterman (cardio) and Dr Zachary(peds) talked over Sydney's lab work. Her potassium is up, she is hypovalemic (still to dry), iron levels ok, sats still down (at 77%). Dr F is cutting her spirolactin in half--this should help with the dryness, and help the rise in Potassium. Dr F asked me to give these change a few days, and watch for the O2 sats to trends up. Dr F wants Syd's sats to be 80 or higher. When she is sleeping -- it can be a little lower. The doc plans to put a halter monitor on Syd at the next appointment in 9 days. Dr F asked me to talk to Sydney about "wearing a backpack" . She thinks Syd's heart rate should not be in the low 60's while sleeping, so the halter monitor will see what Syd's rhythms are doing over 24 hours.
So, my gut was right.We still have things to work on, but we have clear plan now. Thanks for all of the prayers, please keep them coming. Also, thanks for checking in. Good night.
Love,
Christy
Monday, October 26, 2009
The roller coaster
Sydney still to seems be so pale. I just don't understand this loss of color in her face. She came home this way, but I really expected it to be better by now. I guess, I really expected things would be easier or better--at this point. In the last week, I have called the ped's office, had Sydney weighed, spoke with Syd's cardio Dr (Dr Falterman) on the phone, called the on-call cardio doc at 1am, seen Dr F (echo, ekg), watched Syd's sats and fluid out put, and even had to call the weekend on call cardio doc. I swear, I am not crazy!!!! I am normally very level headed. I just did not think her appearance and sats would be worse?! Apparently, this all seems to be par for the course....I guess? Dr F feels her sats should be higher, but this will get better when her volume gets better (b/c she was so dried out). But, the hospital wanted her sats to be 85% or higher, most of the time. Her sats were close, but defiantly varied---lowering during exercise and deep sleep). I was told by Dr A (another doc in our cardio practice) her sats would be the same, if not lower, when she came home. The other time I have called the office, I have been told the same thing. I guess I am scared.... and a little confused. I have been told different things at different times. It is hard not to freak out when I don't know when I should freak out----so the result is---I am freaked out most the time. Sydney sats were all over the place this weekend, so I have been keeping an eye on them. The doc's office has given me a range that they would like to see Sydney in. Should, Sydney fall out of that range for a period of time, I have been instructed to call them.
Tomorrow, I will take Sydney into the ped office. They will do a full work up on her --- including blood work. I hope that her numbers are good. This information will be sent to the cardio office for review, and I will try to update you all tomorrow.
Yesterday, it was helpful to talk to other heart moms. It does seem to take several months for our childrens little bodies to get used to their new anatomy. It does seem to be normal for the sats to be lower at first. It is also normal to feel--like I feel. Thanks Karen! After the first surgery...you just prayed to see your child make it to the 2nd surgery. It was hard. BUT, after the Glenn (2nd surgery), there was such an improvement. It was not an easy recovery, we dealt with a lot of fussiness, junctional rhythm, and fluid retention....but she looked much better. This time we have some of the same issue, but added ones.
I know we will make it though this, but I feel like we are on one heck of a roller coaster ride.
Christy
Tomorrow, I will take Sydney into the ped office. They will do a full work up on her --- including blood work. I hope that her numbers are good. This information will be sent to the cardio office for review, and I will try to update you all tomorrow.
Yesterday, it was helpful to talk to other heart moms. It does seem to take several months for our childrens little bodies to get used to their new anatomy. It does seem to be normal for the sats to be lower at first. It is also normal to feel--like I feel. Thanks Karen! After the first surgery...you just prayed to see your child make it to the 2nd surgery. It was hard. BUT, after the Glenn (2nd surgery), there was such an improvement. It was not an easy recovery, we dealt with a lot of fussiness, junctional rhythm, and fluid retention....but she looked much better. This time we have some of the same issue, but added ones.
I know we will make it though this, but I feel like we are on one heck of a roller coaster ride.
Christy
Thursday, October 22, 2009
Post Fontan Cardio visit
Well, after a long night watching Sydney, then finally putting her in bed with us, we headed off to the cardiologist. They checked Sydney's sats and they were 84%. I will take it after last nights major drop. I talked to Dr Falterman about this drop, and she was not real excited about her sats being in the low 70's and her heart rate in the 60's. Dr F looked at Syd's heart function and it looks really good. There is no fluid on Sydney's spleen, liver or around her heart. This was really good news. Her lungs are clear and the adoletisis sp? (partial lung collapse and junk in the lungs) is gone. So the lasix helped all of this, but it has gone a little too far the other way now. Dr F believes the sats will improve now that her meds have been drop a lot. Sydney is just too "dried out" right now and we should see improvements in the next few days. Syd is so volume dependant, her sats will drop if she doesn't have enough fluid in her body. My job is to get her to drink, drink, drink!! There was some increased leakage in Sydney mitrial valve (it is at 1). Nothing to worry about right now. Syd's heart and body are getting used to her new anatomy and this takes time. Syd is still in junctional rhythm, but surgery seems to always put her in this. This will hopefully resolve itself. If not, Dr F will put a halter monitor on her for 24 hours, and really look at what her heart is going. If this doesn't resolve, then another open chest surgery will be needed to place a pacemaker. We are not there yet. I still have faith. Dr F really wants to see Sydney in the mid 80's while resting (but not asleep). Dr F also said that Sydney is using the "pop off" fenestration (hole in th conduit they placed). This will still allow some of her blood to mix, causing the sats to be lower also. She was not sure why such a "generous" fenestration was placed being that her pressures and anatomy were so good (pressure was 4). Her assumption is based on her history of junctional rhythm, and letting her heart not work as hard.
So we need to go tot he pediatrician on Tuesday to have blood work done, and follow up with Dr F on Nov 5th.
So, all in all, a good report. We will just watch her close and see what happens. Keep praying. I believe this really helps. We still have to be VERY careful about exposing Sydney in any germs. Her body cannot handle healing and fighting a virus at the same time. So, we are still on lock down. We will find out more in Nov.
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Many of you know Claire (2 yr old with TGA)--Sydney best friend and heart friend. She had her heart appointment yesterday at D C Children's.Her appointment went great.... better then expected. No surgical intervention needed at this time, and all will be evaluated again in 6 months. The older she is having the next surgery, the later she will need to have the 3rd (maybe as late as 12 years old). This was all good news. Please continue to keep then in your prayers too.
************************************************************************************Thanks for checking in.
Christy
So we need to go tot he pediatrician on Tuesday to have blood work done, and follow up with Dr F on Nov 5th.
So, all in all, a good report. We will just watch her close and see what happens. Keep praying. I believe this really helps. We still have to be VERY careful about exposing Sydney in any germs. Her body cannot handle healing and fighting a virus at the same time. So, we are still on lock down. We will find out more in Nov.
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Many of you know Claire (2 yr old with TGA)--Sydney best friend and heart friend. She had her heart appointment yesterday at D C Children's.Her appointment went great.... better then expected. No surgical intervention needed at this time, and all will be evaluated again in 6 months. The older she is having the next surgery, the later she will need to have the 3rd (maybe as late as 12 years old). This was all good news. Please continue to keep then in your prayers too.
************************************************************************************Thanks for checking in.
Christy
What is going on!
I have been have a nagging gut feeling for the last few days about Sydney. It was confirmed by a pound weight lost at the ped office. They had me come in and check her weight there, since that was the same scale for all of the other weights. I was worried about this, but they were not. The doc office did not feel Sydney needed to be seen, and instructed the nurse to suggest a few more fatty foods to give Syd.... to help her gain weight. I voiced my concerns about Sydney "looking small", checking her potassium because it had been down in the hospital, or what if her lasix was pushing too much fluid off. The response I got was-- get her to eat more fatty food, her potassium levels were most likely taken at the hospital and should be fine, and we don't adjust lasix. She said to call Syd's cardio doc...and that is what I did. I never EVER have felt like I had a road block at the ped office before. They have always been GREAT!
Anyway, Dr Falterman was not in that afternoon. I l/m a message for her to call and I heard nothing. Strange, I thought, but she called me this am.....right as I was going to call her. She was concerned about the weight loss too. Dr F thought Syd's laxis dose was high, and need to be reduced. So, we held Sydney's afternoon dose and lowered her evening. Dr F asked me to check her sats at bedtime and see what they were. I think she was hoping they would be better....at least I did. I check them this evening and they were still trending down (barely 80%).
I am so worried....afraid to sleep. So here I am blogging, and facebooking (is that a word). So many of you were all still awake, sending thoughts and prayers. So thank you. I really needed that. I talked to Michael, thanks a bunch, which made me feel a lot better about Syd. He explained to me what was most likely going on and that getting her fluid levels up will take a little time...not just a few hours. It is good to know...that this can be fixed...and that I should try to sleep.
I will update tomorrow. Sydney's appointment is at 8:30am.
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Ok....I just freaked out. I checked Syd's sats, one more time before going to bed and they were between 70-75%. They were never this low post Norwood (bt shunt---first surgery). Sydney's heart rate was in the 60's. So, I called the on-call cardio doc. Dr Mcquilkin, wonderful, said it is not unusual for sats to drop that low at night, and it will not hurt her. She sounds dry to him,and the change in meds should help with this. He said we do not need to worry about her sats until they get in the mid to low 60's. This makes me feel a little better...I think. Her heart rate is in the 60's, but she is in junctional rhythm, so he said this is ok right now to. I needed to make sure we could wait to see DR F in the am, and he said we could.
You know, this is the 3rd doctor to say "wow" to me about the amount of lasix Sydney was on. I am going to ponder this for a little while......
Thanks for the support,
Christy
Anyway, Dr Falterman was not in that afternoon. I l/m a message for her to call and I heard nothing. Strange, I thought, but she called me this am.....right as I was going to call her. She was concerned about the weight loss too. Dr F thought Syd's laxis dose was high, and need to be reduced. So, we held Sydney's afternoon dose and lowered her evening. Dr F asked me to check her sats at bedtime and see what they were. I think she was hoping they would be better....at least I did. I check them this evening and they were still trending down (barely 80%).
I am so worried....afraid to sleep. So here I am blogging, and facebooking (is that a word). So many of you were all still awake, sending thoughts and prayers. So thank you. I really needed that. I talked to Michael, thanks a bunch, which made me feel a lot better about Syd. He explained to me what was most likely going on and that getting her fluid levels up will take a little time...not just a few hours. It is good to know...that this can be fixed...and that I should try to sleep.
I will update tomorrow. Sydney's appointment is at 8:30am.
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Ok....I just freaked out. I checked Syd's sats, one more time before going to bed and they were between 70-75%. They were never this low post Norwood (bt shunt---first surgery). Sydney's heart rate was in the 60's. So, I called the on-call cardio doc. Dr Mcquilkin, wonderful, said it is not unusual for sats to drop that low at night, and it will not hurt her. She sounds dry to him,and the change in meds should help with this. He said we do not need to worry about her sats until they get in the mid to low 60's. This makes me feel a little better...I think. Her heart rate is in the 60's, but she is in junctional rhythm, so he said this is ok right now to. I needed to make sure we could wait to see DR F in the am, and he said we could.
You know, this is the 3rd doctor to say "wow" to me about the amount of lasix Sydney was on. I am going to ponder this for a little while......
Thanks for the support,
Christy
Thursday, October 15, 2009
Home is not that easy
I really thought, I would have more time and energy when we finally got home. Boy was I wrong. Don't get me wrong, I am soooo happy to be home. I'm just more tired now, then I was when Sydney was in the hospital. Doesn't make sense...does it.? I think there are many factors involved right now. We had a team of people (docs, nurses and round the clock family/friends) taking care of Sydney. Now, it is just us taking care of Sydney. I guess I am more nervous, worrying about everything, checking on her all night long, worried about forgetting to give her meds, making sure Aubrey is adjusting to all of this, the emotions I have inside about what we just went through and all of the "what if's" that still lie ahead. Maybe I am over thinking it? I know we are not alone...that's not it. It's not that we don't have people willing to help. I just feel inside like I am a disaster right now. I have cried on and off all day long...just trying to release all of these emotions; emotions I have inside that I can't put words to. I do have wonderful feeling too. I have my family back together. This is amazing! To be able to cuddle up with my two girls, read books, hold hands, and get kisses, is more than I could ask for. Maybe, it is just safe for me now, to finally fall apart.
On a more brighter note, I want to thank so many of you for your help. It really takes a "village to raise a child"....especially a heart child. We could not do any of this without your help. I cannot begin to express how lucky we feel to have you all.
Sydney seems to be doing better and better everyday. Her coloring is getting better. She looked so pale (not her lips, hands and feet....they are pink!) when she came home. Her sats at night have been ranging 83-86 while resting/sleeping. I hope this will improve. Sydney is still very traumatized from everything she has had to go through. Syd is afraid of everything. It breaks my heart. Everyday she gets a little better, and I get to see her little personality shine back through. She hides behind me when we go to the bus, or hides her face if someone speaks to her, no hugs for others loved except for mommy, daddy and Aubrey. Even a loved shower is scary to her now.
The Davis household is still on lock down...but I did let Claire (Sydney's best friend and heart friend) come over and play today. I could not believe how happy and perky Sydney looked playing with "Carebear". They ended up "running" around playing chase. Sydney did get fussy a few times today, so I gave her some Tylenol, for some of the "deep pain" the doc's said she would have from surgery. It was uplifting to see her...just be Sydney.
Sorry about the rambling and the emotional out pour, but I found it to be a little helpful to give my feelings a voice. I am ok....we all will be.
On a more brighter note, I want to thank so many of you for your help. It really takes a "village to raise a child"....especially a heart child. We could not do any of this without your help. I cannot begin to express how lucky we feel to have you all.
Sydney seems to be doing better and better everyday. Her coloring is getting better. She looked so pale (not her lips, hands and feet....they are pink!) when she came home. Her sats at night have been ranging 83-86 while resting/sleeping. I hope this will improve. Sydney is still very traumatized from everything she has had to go through. Syd is afraid of everything. It breaks my heart. Everyday she gets a little better, and I get to see her little personality shine back through. She hides behind me when we go to the bus, or hides her face if someone speaks to her, no hugs for others loved except for mommy, daddy and Aubrey. Even a loved shower is scary to her now.
The Davis household is still on lock down...but I did let Claire (Sydney's best friend and heart friend) come over and play today. I could not believe how happy and perky Sydney looked playing with "Carebear". They ended up "running" around playing chase. Sydney did get fussy a few times today, so I gave her some Tylenol, for some of the "deep pain" the doc's said she would have from surgery. It was uplifting to see her...just be Sydney.
Sorry about the rambling and the emotional out pour, but I found it to be a little helpful to give my feelings a voice. I am ok....we all will be.
Tuesday, October 13, 2009
Coming Home!
Syd has been officially discharged!!! We are packed and on our way home as soon as we find a Chic-fil-a for Syd!
Jo (for Christy and Stephen)
Going Home....Are you sure?
Sydney scared of the changes.
Starting to realize we ARE going home.
Watching us leave the hospital.
Get us outta here, Daddy!
Thank you Dr Peeler and UVA, but hope to not need to see you anytime soon!
See you at home Grandmommy and Granddaddy
A nice homecoming (minus Meredith who had to go before the pic)
Thanks Josie!
Monday, October 12, 2009
Home maybe tomorrow?
We might be going home tomorrow...but we will see. We started out the morning back on O2. Oh, what a let down. Sydney's sats went down to 82-84%. Cardio really wants it to be above 85%. Estelle explained to the night shift that Syd's O2 levels were the same as they were all day. They still felt more comfortable putting her back on O2 for the rest of the night. That's okay...better safe then sorry. Thanks Grandma for taking care of Sydney last night...I know it was a long one.
Cardio came though this morning after seeing Sydney back from her walk. and said Syd looked great. They want to keep her on telemetry and monitor her sat only when in her room. This means a little more freedom for her while she is getting her exercise to open her lungs and get those sats up. Her chest continues to be clear, just a little right sided adolestis (sp)which is a slight lung collapse at the bottom. She is in junctional rhythm, but this is what she does after heart surgery. Syd is pooping like crazy, eating and drinking. All good things. As long as she has a good night tonight, then tomorrow might ..... well you know. I am afraid to say it, in fear I might jinx it. I told the doc's, I am ready to take Sydney home, when they think she is ready. I am not pushing them to have her leave....just when it is her time. We will see, but I am hopeful. Her sats have been in the mid to upper 80's today.
Thanks for checking in, and thanks for all of the support.
Love, Christy
Cardio came though this morning after seeing Sydney back from her walk. and said Syd looked great. They want to keep her on telemetry and monitor her sat only when in her room. This means a little more freedom for her while she is getting her exercise to open her lungs and get those sats up. Her chest continues to be clear, just a little right sided adolestis (sp)which is a slight lung collapse at the bottom. She is in junctional rhythm, but this is what she does after heart surgery. Syd is pooping like crazy, eating and drinking. All good things. As long as she has a good night tonight, then tomorrow might ..... well you know. I am afraid to say it, in fear I might jinx it. I told the doc's, I am ready to take Sydney home, when they think she is ready. I am not pushing them to have her leave....just when it is her time. We will see, but I am hopeful. Her sats have been in the mid to upper 80's today.
Thanks for checking in, and thanks for all of the support.
Love, Christy
Sunday, October 11, 2009
There is light......
......at the end of the tunnel. It has been another eventful day, and of course, I am tired. Syd has really been enjoying her sister while here. They just love each other so much. It melts my heart. Aubrey can really motivate Syd to want to get up, walk around, play, and just act like a normal almost 3 yrs old. I love seeing Sydney's little personality come back, and if you know Sydney, the sass is back too! She is such a fighter, and I am so proud of her, to be able to find her smile and humor in all of this. To have her kind of strength.....wow.....she amazes me. Aubrey has been coping with all of this in her own way too. She wants to stay close, needs lots of hugs, especially from sister. She was able to break away from us for a little while and go apple picking with the Kurz. She had a wonderful time! Thanks guys!!
Well, back to the medical stuff. Syd continues to poop. Yeah!! So, this means, she continues to eat and drink (but she needs a little Dora to do so....give the girl what she wants...I say!!). She still hates her meds and puked up her Tylenol, but kept the others down. She is on aspirin, lasix, another diuretic that keeps potassium from depleting (this is what they told me was blood pressure meds yesterday), Tylenol only for pain, and miralax.
We were given orders from cardio to d/c her iv site (nothing was running through it) and walk her without o2. This was great. Syd really liked not having the o2 in her nose. We came back for a break and put the nose piece back on. Sydney sats (o2 levels) were not coming back up as fast as we would like. The nurse agreed to give her a little time to recover, before pushing her O2 back up. Well, they came back up, and the nurse came in to wean her down some more. Do you know what we found.....the o2 had been turned off while we were out of the room, so Sydney had not been receiving any o2. She recovered on her own!!! The nurse called the doctor, and her O2 was d/c'd. She was weaned.
Her sats are still a little all over the place (one time being the probe and the machine), but she has been staying between 80-90% sat levels. Her O2 levels get better after a nice long walk. Really getting her lungs expanding and getting air into them. No x-ray was taken today according to cardio. They said she DID NOT NEED one. Her lungs looked good!! WOW again! I think they may kick us out tomorrow, at the latest Tuesday. This is so scary. I really thought we would need to be here longer....but I am NOT complaining....I just want them to be absolutely sure she is ready to go.
Thanks for check in. I will let you know what tomorrow bring. Hugs!
By the way....Happy Anniversary Steve. I love you as much as I did 12 years ago, when I said, "I do".
Christy
Well, back to the medical stuff. Syd continues to poop. Yeah!! So, this means, she continues to eat and drink (but she needs a little Dora to do so....give the girl what she wants...I say!!). She still hates her meds and puked up her Tylenol, but kept the others down. She is on aspirin, lasix, another diuretic that keeps potassium from depleting (this is what they told me was blood pressure meds yesterday), Tylenol only for pain, and miralax.
We were given orders from cardio to d/c her iv site (nothing was running through it) and walk her without o2. This was great. Syd really liked not having the o2 in her nose. We came back for a break and put the nose piece back on. Sydney sats (o2 levels) were not coming back up as fast as we would like. The nurse agreed to give her a little time to recover, before pushing her O2 back up. Well, they came back up, and the nurse came in to wean her down some more. Do you know what we found.....the o2 had been turned off while we were out of the room, so Sydney had not been receiving any o2. She recovered on her own!!! The nurse called the doctor, and her O2 was d/c'd. She was weaned.
Her sats are still a little all over the place (one time being the probe and the machine), but she has been staying between 80-90% sat levels. Her O2 levels get better after a nice long walk. Really getting her lungs expanding and getting air into them. No x-ray was taken today according to cardio. They said she DID NOT NEED one. Her lungs looked good!! WOW again! I think they may kick us out tomorrow, at the latest Tuesday. This is so scary. I really thought we would need to be here longer....but I am NOT complaining....I just want them to be absolutely sure she is ready to go.
Thanks for check in. I will let you know what tomorrow bring. Hugs!
By the way....Happy Anniversary Steve. I love you as much as I did 12 years ago, when I said, "I do".
Christy
Walking, talking and now pooping.....
Today has been another pretty good day. We are still having some trouble getting Sydney off of her O2....so that may be what keeps her in the hospital.
Poor thing, started off the morning puking again. Syd was so constipated...her tummy was so big, hard and distended. I am sure constipation is what caused the vomiting (along with hating her lasix). I prayed for poop (which is a new one for me!!), and it finally came, several times in fact. Once her tummy felt better, she started to eat and drink better too. "My tummy better, Mama".
So, here are the things that need to be accomplished before we go home:
Poop---check
eating---at least better--check
walking---check, almost ran when she heard best friend Claire was here to visit.
Drinking---check, much better
Off o2--not yet
Fluid improvement in the lungs--getting better
Sydney is taking aspirin again, blood pressure meds, O2, miralax, lasix and Tylenol. She really looks great. So please continue to keep her in your prayers for continued improvement.
We had some wonderful visitors within the last few days...which has really lifted all of our spirits. The biggest deal to Sydney, was seeing her "Carebear" (Claire her best friend). Sydney just started walking today, and had been so weak and cautious. When Sydney heard Claire was here, she threw caution into the wind, and tired to run to see "Carebear".
I am so so very tired, and I am leaving out so much, but I cannot make it anymore.
Goodnight and thanks for the prayers and support.
Christy
Poor thing, started off the morning puking again. Syd was so constipated...her tummy was so big, hard and distended. I am sure constipation is what caused the vomiting (along with hating her lasix). I prayed for poop (which is a new one for me!!), and it finally came, several times in fact. Once her tummy felt better, she started to eat and drink better too. "My tummy better, Mama".
So, here are the things that need to be accomplished before we go home:
Poop---check
eating---at least better--check
walking---check, almost ran when she heard best friend Claire was here to visit.
Drinking---check, much better
Off o2--not yet
Fluid improvement in the lungs--getting better
Sydney is taking aspirin again, blood pressure meds, O2, miralax, lasix and Tylenol. She really looks great. So please continue to keep her in your prayers for continued improvement.
We had some wonderful visitors within the last few days...which has really lifted all of our spirits. The biggest deal to Sydney, was seeing her "Carebear" (Claire her best friend). Sydney just started walking today, and had been so weak and cautious. When Sydney heard Claire was here, she threw caution into the wind, and tired to run to see "Carebear".
I am so so very tired, and I am leaving out so much, but I cannot make it anymore.
Goodnight and thanks for the prayers and support.
Christy
Friday, October 9, 2009
A very short update
I am so tired my hands are shaking, so this will be short and not as detailed as Josie has been doing (thanks Josie!!).
We had a Great day! Busy day. They have mentioned the words discharge...maybe at the beginning of the week (knock on wood). We will see. Things can change, but we can pray for more improvement everyday. Sydney had her drainage tube removed, central line out, clear chest x-ray...just a little adoelinis (sp??--aka surgery snot), she worked with pt and walked, ate some food without puking, I got to hold her for the first time, and we were d/c'd to the floor and by the grace of God put in a private room.
We are still working on pooping! She needs to poop!! All that talk about poop Syd...now it is time to do it!! We are still working on getting her off of O2 (this has been back and forth), making sure her lungs stay clear, and continue to eat.
I am going to sleep next to my very missed 6 year old. I am exhausted, and need some snuggles from her.
Thanks for checking in,
Christy
We had a Great day! Busy day. They have mentioned the words discharge...maybe at the beginning of the week (knock on wood). We will see. Things can change, but we can pray for more improvement everyday. Sydney had her drainage tube removed, central line out, clear chest x-ray...just a little adoelinis (sp??--aka surgery snot), she worked with pt and walked, ate some food without puking, I got to hold her for the first time, and we were d/c'd to the floor and by the grace of God put in a private room.
We are still working on pooping! She needs to poop!! All that talk about poop Syd...now it is time to do it!! We are still working on getting her off of O2 (this has been back and forth), making sure her lungs stay clear, and continue to eat.
I am going to sleep next to my very missed 6 year old. I am exhausted, and need some snuggles from her.
Thanks for checking in,
Christy
Thursday, October 8, 2009
Good Times
Look who's up and active today?!
She is now trying every single bottle of bubbles in the room, using every possible "wand." We're not complaining though because she's found her voice and her hysterical little personality! Welcome back, Syd, we've missed your funny happy delightful personality.
Josie (for Christy & Steve)
She really likes to blow them in Daddy's face!
Popping them on Mama is also funny!
She is now trying every single bottle of bubbles in the room, using every possible "wand." We're not complaining though because she's found her voice and her hysterical little personality! Welcome back, Syd, we've missed your funny happy delightful personality.
Josie (for Christy & Steve)
Baby Steps
Sydney continues to look wonderful and to take baby steps in the right direction. Today was another good day. We were a little distressed this morning after the bleeding incident and then the news about the chest tubes, but Heather got us motivated to do some serious work/play with Syd this afternoon. We got her sitting up at a 90 degree angle for almost an hour! Excellent job Sydney. At first she was pretty angry with us, but soon enough she was playing with play doh and stickers. What a trooper. I got her to smile with bubbles and she even managed to blow a few just for Michael! While we played with stickers, she started singing the alphabet and later she sang along with Youtube to some of her favorite songs!
There were some rough moments today for Sydney. She still has lots of fluid in her chest. Her tubes got a little backed up, but when we sat her up, she managed to put out over 75ccs in one hour. She must have felt so much better because her sats climbed to 94!! In fact, there was so much that it seeped out of her incision and collected in her diaper. Crazy. Because she drained so much better while sitting up, we decided to try and keep her at a bit of an angle until the fluid had dried up for a bit. Right now she's sleeping on an incline in stead of laying flat.
Syd doesn't like having the tubes "stripped" or squeezed to suck out the fluid. Since the tubes have been clotting up, the nurses have to strip the tubes once an hour and it's hard to see her get upset. We were relieved that her output was about half of what it was yesterday, so definitely progress in the right direction! Because of the issues with her chest tube, her arterial line, and then briefly with her central line, we were worried that Syd might be clotting. The first set of labs clotted before they could even be sent to the lab, but the second set looked better than they had earlier. She will however resume her usual aspirin regimen tomorrow. Although we did mover her around more today than yesterday, we didn't get her out of bed. The medical team doesn't really want to jostle her too much until her central line and pacer wires have been removed; Christy is hoping that might be tomorrow!
Sydney also got to eat today (and drink her beloved milk). She started off with popsicles, then milk, then applesauce and a hamburger bun. Eating seems a little difficult still because apparently most things taste bad when she first puts them in her mouth. It's definitely a little disheartening, but if we're persistent, she complies. After sitting up for that whole hour, her nurse approved a "therapeutic lollipop" which Sydney was more than willing to eat!
She was much more alert today and managed to keep a fairly regular schedule. Tonight she put herself to sleep without any medical assistance! She was worn out. Grandmommy is at the hospital with her tonight, so we're hoping it's a quiet one. We're also praying that she can continue to hold her sats steady in the 80s on a lower level of oxygen. She bumped around on different levels of Os today but evened out tonight between 1.5 and 2 liters.
Tomorrow we're hoping to get her up again, using her lungs and draining off all that extra fluid. Please continue to pray for less fluid in her chest, for higher sats on lower oxygen and for a generally smooth recovery. Thanks for all the prayers, they are definitely working.
Lots of love,
Josie (for Christy & Steve)
There were some rough moments today for Sydney. She still has lots of fluid in her chest. Her tubes got a little backed up, but when we sat her up, she managed to put out over 75ccs in one hour. She must have felt so much better because her sats climbed to 94!! In fact, there was so much that it seeped out of her incision and collected in her diaper. Crazy. Because she drained so much better while sitting up, we decided to try and keep her at a bit of an angle until the fluid had dried up for a bit. Right now she's sleeping on an incline in stead of laying flat.
Syd doesn't like having the tubes "stripped" or squeezed to suck out the fluid. Since the tubes have been clotting up, the nurses have to strip the tubes once an hour and it's hard to see her get upset. We were relieved that her output was about half of what it was yesterday, so definitely progress in the right direction! Because of the issues with her chest tube, her arterial line, and then briefly with her central line, we were worried that Syd might be clotting. The first set of labs clotted before they could even be sent to the lab, but the second set looked better than they had earlier. She will however resume her usual aspirin regimen tomorrow. Although we did mover her around more today than yesterday, we didn't get her out of bed. The medical team doesn't really want to jostle her too much until her central line and pacer wires have been removed; Christy is hoping that might be tomorrow!
Sydney also got to eat today (and drink her beloved milk). She started off with popsicles, then milk, then applesauce and a hamburger bun. Eating seems a little difficult still because apparently most things taste bad when she first puts them in her mouth. It's definitely a little disheartening, but if we're persistent, she complies. After sitting up for that whole hour, her nurse approved a "therapeutic lollipop" which Sydney was more than willing to eat!
She was much more alert today and managed to keep a fairly regular schedule. Tonight she put herself to sleep without any medical assistance! She was worn out. Grandmommy is at the hospital with her tonight, so we're hoping it's a quiet one. We're also praying that she can continue to hold her sats steady in the 80s on a lower level of oxygen. She bumped around on different levels of Os today but evened out tonight between 1.5 and 2 liters.
Tomorrow we're hoping to get her up again, using her lungs and draining off all that extra fluid. Please continue to pray for less fluid in her chest, for higher sats on lower oxygen and for a generally smooth recovery. Thanks for all the prayers, they are definitely working.
Lots of love,
Josie (for Christy & Steve)
Wednesday, October 7, 2009
Wednesday Update
Sydney is continuing to do well. She is off ALL her medicines except the lasix to help her get rid of fluid. Wow!! Today she can start eating food if she's interested. We have a big box of Goldfish ready when she is!
There are few things that we're watching pretty carefully today. Her sats have been a little lower than we'd like, and she's still on 2.5 to 3 liters of oxygen. She is also still producing lots of fluid from her chest tubes. They split the tubes today to try and isolate which tube is drawing off the most fluid so that they know where it's coming from. It's too early to tell the reason for the continued fluid but there are some possibilities. One fear is that a lymph node may have been knicked during the procedure and that it's the source of the fluid. Please pray that this is not the case because it will ensure a longer hospital stay. The PICU is very busy today with some critical patients, so we haven't heard the results of her x-ray this morning; it could be that her lungs are still very wet and that they're the source of the fluid. We're hoping to avoid effusions, so pray that her lungs will start to clear up soon.
Sydney's arterial line failed this morning and had to be removed. Poor thing bled for a while and was not happy with having pressure applied to stop the bleeding. She's pretty tired from all that excitement, so she's napping now. When she wakes up, we're going to try and "play" with her to get her using her lungs. Thanks to Karen for providing all the goodies that Jameson liked to get Syd up and going!! I know Christy would love to be able to hold her today, so say a prayer for that as well. We'll keep you updated as we know more.
Thank for the continued prayer, it helps so much. If you would keep another family in your prayers ~ little Parker had surgery this morning to remove a tumor from his aorta. He was a typical active 3 year old a week ago when he went in to the pediatrician and the tumor was discovered. I know his family is feeling blindsided and need all the love and support they can get.
Lots of love,
Josie (for Christy & Steve)
There are few things that we're watching pretty carefully today. Her sats have been a little lower than we'd like, and she's still on 2.5 to 3 liters of oxygen. She is also still producing lots of fluid from her chest tubes. They split the tubes today to try and isolate which tube is drawing off the most fluid so that they know where it's coming from. It's too early to tell the reason for the continued fluid but there are some possibilities. One fear is that a lymph node may have been knicked during the procedure and that it's the source of the fluid. Please pray that this is not the case because it will ensure a longer hospital stay. The PICU is very busy today with some critical patients, so we haven't heard the results of her x-ray this morning; it could be that her lungs are still very wet and that they're the source of the fluid. We're hoping to avoid effusions, so pray that her lungs will start to clear up soon.
Sydney's arterial line failed this morning and had to be removed. Poor thing bled for a while and was not happy with having pressure applied to stop the bleeding. She's pretty tired from all that excitement, so she's napping now. When she wakes up, we're going to try and "play" with her to get her using her lungs. Thanks to Karen for providing all the goodies that Jameson liked to get Syd up and going!! I know Christy would love to be able to hold her today, so say a prayer for that as well. We'll keep you updated as we know more.
Thank for the continued prayer, it helps so much. If you would keep another family in your prayers ~ little Parker had surgery this morning to remove a tumor from his aorta. He was a typical active 3 year old a week ago when he went in to the pediatrician and the tumor was discovered. I know his family is feeling blindsided and need all the love and support they can get.
Lots of love,
Josie (for Christy & Steve)
Good Day
Sydney finally slept today! It was such a relief to see her peaceful. It also meant that Stephen could get some much needed sleep as well. Sleep is always a good thing.
All good news today. Syd is completely off of her blood pressure meds (epi and norepinephrine) and her perfusion meds. Yay! We were able to get her a little more upright today and, big girl that she is, she insisted on using the bed pan instead of wetting her diaper. She even felt well enough to talk to her sister on the phone tonight. Her color today was much better. Maybe the green we saw yesterday was related to her nausea? Regardless, she kept everything down today and may be able to start on something more solid tomorrow. She is still in junctional rhythm, but Heather saw a a few P waves on her EKG, so maybe she 's trying to convert to sinus.
Sydney's lungs are still a little wet and she's producing lots of fluid through her chest tubes, but that's all very normal. The goal is to get that fluid out of her body so that her lungs can start working. The goals for tomorrow are to get her up a little bit, to get her coughing and taking deep breaths, to get rid of the fluid and to wean her oxygen. Big goals, but she's such a strong little girl, I'm confident she can do it!
lots of love,
Josie (for Christy and Steve)
All good news today. Syd is completely off of her blood pressure meds (epi and norepinephrine) and her perfusion meds. Yay! We were able to get her a little more upright today and, big girl that she is, she insisted on using the bed pan instead of wetting her diaper. She even felt well enough to talk to her sister on the phone tonight. Her color today was much better. Maybe the green we saw yesterday was related to her nausea? Regardless, she kept everything down today and may be able to start on something more solid tomorrow. She is still in junctional rhythm, but Heather saw a a few P waves on her EKG, so maybe she 's trying to convert to sinus.
Sydney's lungs are still a little wet and she's producing lots of fluid through her chest tubes, but that's all very normal. The goal is to get that fluid out of her body so that her lungs can start working. The goals for tomorrow are to get her up a little bit, to get her coughing and taking deep breaths, to get rid of the fluid and to wean her oxygen. Big goals, but she's such a strong little girl, I'm confident she can do it!
lots of love,
Josie (for Christy and Steve)
Tuesday, October 6, 2009
Long Night
Sydney has not been able to sleep since she came out of surgery and she must be feeling pretty miserable. She'll take tiny little cat naps for 10 or 15 minutes and then jerk awake and cry. She wants to drink juice so badly, but she hasn't been able to keep anything down. They are wondering if she may be having a reaction to the calcium that they're giving her to help her heart rate. Please pray for Sydney to get some much needed sleep, it doesn't seem like she can recuperate without it.
In good news, she is completely off her pacer! Yay Sydney. She is still in junctional rhythm but that's ok; she went home after her past two surgeries still in junctional and then she converted back into normal sinus on her own. Late last night they began weaning her off of the epi that was helping stabilize her blood pressure and she she was responding well to that. Her sats have been hanging out in the high 80s and low 90s, higher when she's not agitated, so we hope once she can rest that they will stay in the 90s.
Christy and Steve are with her right now, but poor Stephen hasn't slept in almost two days. We're hoping that he can come home and get some sleep so that he stays strong for his baby! We'll update more when we can.
Lots of love,
Josie (for Christy & Steve)
Monday, October 5, 2009
Feeling Blessed
Christy and Steve are back with Sydney right now! We are feeling so blessed that Sydney has done so well to this point.
We did get to hear from the nurse practitioner who filled in some of the details. Sydney has gone into junctional rhythm during both of her last surgeries and, predictable little girl that she is, she did again this time. It means that her heart is not beating as efficiently as it would in normal sinus rhythm. She is getting paced right now, but that is almost certainly something that she will overcome in the next few days.
Sydney's blood pressures were a little lower during this surgery. Her body now has to adjust to pushing so much more blood through her lungs, so she is on medication to keep her blood pressure up. She should make this adjustment pretty quickly, hopefully by the end of the day or tomorrow. Junctional rhythm is just not efficient enough to keep her blood pressure high enough to handle the fluid, so she's getting a little assistance. Pray that she adjust to this new anatomy and that she can get off the blood pressure medicine and pacer fairly quickly!
The rest of the day should be pretty quiet as she tried to recover. She is awake and breathing on her own, but will be somewhat sedated to give her body a chance to recover and adjust. We're hoping that by tomorrow she might be able to sit up and do some coloring. We don't know when she'll be up and around yet; that is the goal because it helps her lungs to heal, but we'll take it one day at a time.
Sydney 1 hour post op
*************************************************************************************************************************
Since I was writing that, I got to go in and see her. It is absolutely amazing to see how well she's doing. She is awake and talking, worrying about the dried blood on her hand, and watching TV. Before Dr. Peeler had even left her ICU room she had requested cartoons! I am amazed, astounded, literally speechless that this little girl was having her heart re-routed less than two hours ago and she is in there now holding her Mama's hand, talking about her milk, and smacking her lips when Christy applies her "lipstick" (aka chap stick). God is so good! Technology is amazing. We are so blessed to have the amazing team taking care of her and guiding her on this journey. It is truly awe inspiring.
Sydney, you are such a fighter and that spirit shines through. Your grace, light, and courage are a source of inspiration. We love you.
Thank you for all the prayers, please keep them coming! Specifically, Sydney is on a good amount of medication to stabilize her blood pressure and the faster she can come off that, the better she'll be.
Lots of love,
Josie (for Christy and Steve)
Off Pump
Sydney is off pump and her heart is beating on its own. That is such wonderful news to hear! The surgery should be over soon.
Surgery begins
The anesthesiology team just took Sydney back. It will take an hour and half or so to get her "prepped," so surgery will probably begin around 9 or so. We'll update again when we hear that surgery has begun.
This always feels like the hardest part; please keep Sydney and her medical team in your prayers.
Dr Peeler just came in to talk to us. He wanted to make sure we did not have any questions, and to tell us that surgery should be wrapping up around 11:30am or so.
Getting checked in
Anesthesia Visit ~ found her smile for them
This always feels like the hardest part; please keep Sydney and her medical team in your prayers.
Dr Peeler just came in to talk to us. He wanted to make sure we did not have any questions, and to tell us that surgery should be wrapping up around 11:30am or so.
Getting checked in
Anesthesia Visit ~ found her smile for them
Feeling a little "sleepy"
Really really dopey...very funny!
Sunday, October 4, 2009
Surgery is set....
Sydney is scheduled to be the first case tomorrow---6am is check in. Sydney will not be able to have anything to eat or drink after midnight. I think handing her over to the staff tomorrow.... will be the hardest thing I have EVER done...in my whole life. I know she is in the best hands possible, but it is still hard. I love this little girl with all of my heart.
Thanks so much for your continued support and prayers! Keep them coming...there is power in prayer.
Love to all,
Christy
Thanks so much for your continued support and prayers! Keep them coming...there is power in prayer.
Love to all,
Christy
Saturday, October 3, 2009
A few answers for you all
Many of you have been asking me.....what is wrong (laymen's terms) with Sydney:
Sydney has what is called Tricsupid Atresia also know as hypoplastic RIGHT heart syndrome (HRHS)---you hear more about HLHS. What this means is she really has 1/2 heart. She was born with 1 ventricle, a VSD and ASD (holes in the heart---between the atria and ventricles. The last part of these major surgeries she is having is call the Fontan. UVA surgeon, Dr Peeler, will be "finishing what he started". Right now the blood mixes (red and blue blood) in heart heart causing her to be "blue"(sats 80-84%). This next surgery(the Fontan)will "hopefully" finish the bypass they have been making. It is called an extra-cardiac conduit. This will separate the "red" and "blue" blood. There will be a "pop off" placed in the conduit ...another hole in the heart to help with pressures not getting too high. We hope that she will get used to her new blood flow quickly. The longer Syd drains fluid from her lung the longer she will be in the hospital. We hope that she will have o2 level in the 90's after this(which will be closer to normal)
Thanks for thinking about us and keeping Sydney in your prayers. There is a lot of power in prayer...so thank you.
I also wanted to wish Aubrey, my brave older daughter a Happy Birthday (yesterday). I feel so lucky to have these wonderful little girls.
Also, I feel lucky to have such wonderful family, friends ,neighbors, and the mlh support through this difficult time. I feel blessed to have you all. I especially want to thank Josie for being my rock, and keeping me together, helping me prepare and the overwhelming support she has offered. I love you!
Christy
Sydney has what is called Tricsupid Atresia also know as hypoplastic RIGHT heart syndrome (HRHS)---you hear more about HLHS. What this means is she really has 1/2 heart. She was born with 1 ventricle, a VSD and ASD (holes in the heart---between the atria and ventricles. The last part of these major surgeries she is having is call the Fontan. UVA surgeon, Dr Peeler, will be "finishing what he started". Right now the blood mixes (red and blue blood) in heart heart causing her to be "blue"(sats 80-84%). This next surgery(the Fontan)will "hopefully" finish the bypass they have been making. It is called an extra-cardiac conduit. This will separate the "red" and "blue" blood. There will be a "pop off" placed in the conduit ...another hole in the heart to help with pressures not getting too high. We hope that she will get used to her new blood flow quickly. The longer Syd drains fluid from her lung the longer she will be in the hospital. We hope that she will have o2 level in the 90's after this(which will be closer to normal)
Thanks for thinking about us and keeping Sydney in your prayers. There is a lot of power in prayer...so thank you.
I also wanted to wish Aubrey, my brave older daughter a Happy Birthday (yesterday). I feel so lucky to have these wonderful little girls.
Also, I feel lucky to have such wonderful family, friends ,neighbors, and the mlh support through this difficult time. I feel blessed to have you all. I especially want to thank Josie for being my rock, and keeping me together, helping me prepare and the overwhelming support she has offered. I love you!
Christy
Friday, October 2, 2009
Happy Birthday Aubrey
Aubrey turned 6 today! My baby is soooo big! I cannot believe it! We wanted to make sure this day was special for her, even though we could not have the "big" birthday party liked she had hoped for because for Syd upcoming surgery.
Just what Aubrey wanted!! A rainbow cake!!! Josie and I worked on this cake for 3 days!!! Thanks Josie for making this happen! It could not have been done without you!!
YUM!!
WE pulled if off!! Aubrey was soooo happy about her birthday...just the way it was. Happy Birthday big girl!! Mama loves you bunches!!
Just what Aubrey wanted!! A rainbow cake!!! Josie and I worked on this cake for 3 days!!! Thanks Josie for making this happen! It could not have been done without you!!
YUM!!
WE pulled if off!! Aubrey was soooo happy about her birthday...just the way it was. Happy Birthday big girl!! Mama loves you bunches!!
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