I could not wait one more minute

3/2/2010 Yesterday was just down right crazy.  I really felt that Sydney should have never gone home after our pre-op appointment...but the Doc felt she was stable.  The doc changed Sydney's breathing treatments to xopanix (sp?), so Sydney's heart rate would be lower then when using albuteral. We went home nervous.  During the night Sydney's O2 levels dropped significantly...but her heart rate was lower.  I was up all night long....watching....waiting for the nebs to work....making sure she was still breathing....and giving her treatments.  Syd continued to crumble as the next day went on.  Sydney respiration rate was 40 plus just sitting in my lap doing NOTHING!  She said it was hard to breath.  She wanted to play, and would try, but she had to work so hard to do it.  Her color was really bad, you could see her skin pulling in under her ribs when she was breathing.  She also continued to be full of fluid---my 3 year old looks pregnant. 

 I could not wait one more minute.  We decided this was no longer acceptable, and she was going to the hospital...even if she had to go through the ER. I made a lot of calls with a great deal of frustration.....but the end result was, she was going back to UVA for a direct admit.   Syd was assessed, and then put on 1 liter of O2.  This really did not seem to help at first....maybe a few points.  The irony is, Sydney started to sat at 80 again.  I had not seen this in almost 24 hours, and now she is going to show everyone I am crazy.  That's fine....I am loony...no shocker there.  We did notice Syd was nice and stable through the night.

3/3/10--Sydney's sats have been trending down.  Her numbers have been getting lower and lower.  There seems to be no immediate plan for her.  It seems their hands are tied, until the doc's can get the results from the cath.  It is soooooo frustrating.  Josie and I have been watching Sydney smile and giggle at everyone, because that is how she is....sick or not sick....and we have been watching her get worse.

The plan for now--cath in the morning to see they can fine out what the issue is.  Once we know, then treatment can begin. I am really tired, and I just cannot explain anymore...so I will update again after the cath.

Love to you all and thank you all soo much for all of the thoughts and prayers.  Keep them coming!  .

Love,

Christy