Surgery was canceled this morning. A child came in last night that could not wait to have surgery. This means Syd and the other child waiting to have surgery, needed to be bumped. The another child is ahead of Syd. If he is stable, Sydney will have to wait another day. So, we do not know when Sydney will have surgery. Could be tomorrow, or Wednesday. So we wait. It's not like I can pray for Sydney to have surgery tomorrow...if it meant someone else child getting worse...so we will put it in His hands.
Sydney is not her normal happy self today. Frankly, she is a little crabby. I don't blame her, maybe it is just being here. I hope that it is nothing else going on.
We were able to get Sydney to attend the VERY cute preschool program here today. At first, she was scared, not wanting us to leave. So we stayed and played too...until she felt more comfortable. Sydney finally and happily let us go, and we got some good non hospital coffee. She had a lot of fun working on her rainbow craft, talking about the days of the week, and listening to stories. She enjoyed getting out of her room even though attached to her telemetry and o2....but it was freedom.
I feel like we have been her forever. Longer then the Glenn and almost as long as the Fontan. I would like her to get well soon, so we can bring our baby home---well. We were just not prepared to be here....and definitively not this long.
I will keep you all posted. Love to all.
Christy
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