Praying for answers

Sydney had another bad day.  I really had hoped, we would be going forward, not backward.  I'm finding myself worrying to the point of tears and nausea.  I am fighting off the "what if's" that are going through my head. Please, God make my baby better.  Please, God, help us to find the answers, so she can grow up, play and have a good, happy life. That is what I want for her.

Syd's O2 sats have been very low (even saw 58 at rest) today. She scared me to death! She is responding some to O2--it took 2 litters to get her back into the low 70's. The Pacemaker doc is coming in the am to "tune up" or "interrogate" the pacer. Pulmonary visited Syd also today, and they heard a wheeze today.  The problems is....Cards wants to wait until the pacemaker has been adjusted, before adding any breathing treatments. The treatments will mess with her heart rates at this point, and she needs this "tune up". It has been awful to feel so powerless...as we wait...watch...and hope tomorrow, we will see results.  We need a plan, and I want it ASAP.  I want all the docs working with her, to have a sit down discussion and come up with a plan, with me. All we are getting right now is,"she can not go home like this".  I need to know what is next.

On a positive note, Sydney did brighten up for Grand-mommy, Grand-daddy and Aubrey today.  You could tell she was not up to snuff, but she was glad they were there.  Lots of snuggling, a few walks trying to open up her lungs, and a lot of coloring.

It was, also, really great to see Aubrey, my little shining star.  I have missed her like crazy, and do not like not have my two special girls apart.

Thanks as always for checking in, and please continue to pray for my baby girl.

****update**** as I was writing this.  A chest x-ray was taken.  Sydney started to moan...asked for Tylenol...took her pee pee and she screamed out in pain.  First she said her back her and then her side.  This is the second time she has done this today.  The plan to take a urine and the x-ray has been done.  The doc does not think it was the removal of the chest tube, because the doc does not hear any other "air sounds".... but the x-ray would tell.  Thinking back, things could have started to go backwards then?  I will think about that for a bit.

Love always,
Christy